My LMS adventure

I'm going to use this page to track other cancer blogs... I don't read all of them. I first started this blog because I didn't find any dealing with my type of cancer. There is also a need for personal cancer information. It helps to know what others have gone through, and how they are coping. The saddest part is that many blogs just stop. I don't know what happened to the writer. I can guess. But I'm grateful for the footprints they've left. I know that treatments in the future will be different. Look at how much they have changed in the last ten years! In time, these links will stop working. Until then, here are the words from cancer's front line. I found this one via Facebook: https://ninerstrong.wordpress.com/ Michael Gratz passed away on Valentines Day, February 14, 2016. Michael was 35. He was diagnosed with clear cell sarcoma in 2009. Beloved husband of Jennifer. Loving father of Rylie and Laynie. Cherished son of Brad and Pat. Dear

I was diagnosed with Uterine Leiomyosarcoma in December, 2014. The past year has been a blur, Chemotherapy, 3 hospitalizations, a port installed, etc. Knitting helps me wait. Yesterday I had a CT scan done. I started a new therapy (AI, hormone inhibition therapy) about 3 weeks ago. The CT scan is to see if it is working. Normally, I get the scan, and the next day get the results. This time I get to wait a week. Realize that the best outcome is that the tumors are not getting bigger. They'll still be there. So I'm waiting, and knitting. I've been trying different patterns for baby booties. It just seems like a good, life affirming thing to do. I'm also cleaning, organizing my home, and doing paperwork. I'm trying to find lots of ways to kill time. I got the results the following Monday, Tumors still present. The new treatment is too new to know if it is working, so this scan was a baseline scan. I'll know more in two months.

http://www.healio.com/hematology-oncology/sarcoma/news/online/%7B16911454-da9f-469b-9753-c764ac31ded4%7D/letrozole-shows-promise-in-advanced-uterine-leiomyosarcoma Well, letrozole is the medication I'm currently on. Today is Friday. Monday I go for my next CT scan. PFS= Progression Free Survival. Definition (Because I had to look it up..) From Cancer.gov PFS definition link The length of time during and after the treatment of a disease, such as cancer, that a patient lives with the disease but it does not get worse. In a clinical trial, measuring the progression-free survival is one way to see how well a new treatment works. That's the good definition. Here's the one that stopped me in my Internet tracks. From Wikipedia (which of course I will make fun of right now because I emotionally do not like this definition--- despite the tough love reality of it. ) Progression-free survival (PFS) is a measure of the activity of a treatment on a disease. It is the time