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Showing posts with the label food

Status Report February 1, 2017

Two years past diagnosis and initial treatment. Third round of Yondelis finished yesterday. Feeling good. I was able to feel the large liver tumor, there's little there (including no pain). I've got a CT scheduled to find out if the liver tumor is going/going/gone. I've been very weak. Recently my resting heart rate, after walking a few feet, was 129. Not good. I need to move around, so I keep healthy. I've been walking with a cane, walker and (at the hospital) wheelchair. Nesting: I've been nesting.. curling onto the couch, playing on the computer, knitting, sleeping, watching TV, eating and drinking. This has been BAD for me. SO I'm now standing up on a regular basis.... I am at least staying awake during the day.... so I am sleeping through the night. I'm realizing that eating is huge. When I eat breakfast, I can move through the day... My reserves are down that far. I've lost a total of 45 pounds in two years. Twice I've los...

So what do you eat if you know food may taste awful for the next six months?

And I know how this works... My department is always open for employees on light duty.  At one point, a maintenance man was on light duty, he was going through chemo for GIST.  The kitchen staff would fix a plate for him for breakfast, since he had meds he had to take with food.  He shared my office, so I could smell the glorious food... and he picked at it.  I know what may be coming. So knowing I'll have food restrictions, what do I eat now? Sunday I had chocolate cake for lunch.  and coffee.... not a vegetable or fruit in sight.  It was glorious.  Sunday night I tried a new sushi place.  All you can eat.. but not the buffet type.  Instead, you order rolls, they fix rolls, and you pay a flat price.  Amazing. I've been reading the rules for eating.  Mostly they are to avoid infection, since chemo is carpet bombing my immune system.  Order drinks without ice, order food without garnishes. I'll need to make a short che...