My LMS adventure

Yesterday was Cycle #6 with Yondelis aka Trabectadin.  I love this drug.  I know it is expensive, and new.  I live near Moffitt Cancer Center in Tampa, so the Monday and Tuesday visit every three weeks is not bad.  They've got me on OnBoard to keep my red blood cells up.  This is not the first drug for me, I've listed my previous treatments at the end of this post. Here's how my treatment goes: Monday morning, I go to Moffitt Cancer Center, report to the lab, get blood drawn, and the port accessed.  Next stop, Gyno Oncology, where I check in with the Medical Assistant (weight, Blood pressure, pulse, temperature,)  Then I visit with an advance practice nurse, who reviews medications, allergies, current complaints, symptoms, questions for the oncologist).  Then I see the oncologist.  Questions asked and answered, next steps for treatment discussed.  Yesterday, we discussed when the next scan would be.  Ordinarily she g...

Okay, CT results from last Thursday. SMALLER.... all the lesions are about half to a quarter of the size they were. The liver lesion is dead, and slowly being carted off by my body's trash system. The spinal vertebra shows no growth; the adrenal is smaller (first time!!) and the lung lesions are shrinking. SMALLER. Other good things? I found the clothes basket with the missing underwear which now doesn't fit because of my 40 pound weight loss. No, I wouldn't recommend this diet. Another good thing? I had the energy to look for and find the laundry basket. -- I've got my appetite (and hair) back with this maintenance treatment of Yondelis. Ah, I'm pulling out the tape measure, and then ordering my fav underwear from Hanes.com. Heck, I may even order some yoga pants since all I have are black.....and too big (fortunately they have drawstrings....so they fit any weight.)