My LMS adventure

Okay, CT results from last Thursday. SMALLER.... all the lesions are about half to a quarter of the size they were. The liver lesion is dead, and slowly being carted off by my body's trash system. The spinal vertebra shows no growth; the adrenal is smaller (first time!!) and the lung lesions are shrinking. SMALLER. Other good things? I found the clothes basket with the missing underwear which now doesn't fit because of my 40 pound weight loss. No, I wouldn't recommend this diet. Another good thing? I had the energy to look for and find the laundry basket. -- I've got my appetite (and hair) back with this maintenance treatment of Yondelis. Ah, I'm pulling out the tape measure, and then ordering my fav underwear from Hanes.com. Heck, I may even order some yoga pants since all I have are black.....and too big (fortunately they have drawstrings....so they fit any weight.)

One advantage of where I live is the many activities. Three days a week, there is an 8:00 walking class... which follows a video and walks (in place in an air-conditioned room) three miles. I've got a fitbit, which helps remind me that I need to move more. Some days, I walk so little that the most I walked in 15 minutes was under 100 steps. Meanwhile, I called the Moffitt today about the non-healing wound. It's been three weeks, it doesn't seem to be making progress. I've got an appointment with the nurse practitioner on Monday. After hitting several drug stores, I found the gauze that I need for the wet-to-dry dressing, and got more tape. I like this tape, not as sticky, so it (hopefully) will be easier on my skin. I'm writing this blog for myself, as well as others who have uLMS (or LMS in general). I want to remember the challenges, how it was. It's getting better. Tomorrow I'm doing Qi Gong. With the new year, I'm making some minor c...

In 2014, I had surgery on December 23rd. I was discharged from the hospital on Christmas Day. The following Monday I got a call from my surgeon. She kept apologizing, and told me the pathology report showed Uterine Leiomyosarcoma. I had a flashback to medical terminology... Leio- smooth, Myo- muscle, sarcoma - Cancer. Later after some Internet research I realized why she was apologizing. "Rare and aggressive" were the two terms used to describe this. I dug until I found statistics... how long will I live? I reached out to others with this disease. ---Even found a few who were diagnosed at the same month I was. My surgeon had done a residency with a gynecology oncologist, Dr. Chon. She had made phone calls to Dr. Chon, and gave me the phone number to make an appointment with Moffit Cancer's Women's Center. And that's how this adventure began a year ago. What a wild ride it has been. Everything changed... Where I live, where I work (ummm, I don'...