My LMS adventure

Okay, CT results from last Thursday. SMALLER.... all the lesions are about half to a quarter of the size they were. The liver lesion is dead, and slowly being carted off by my body's trash system. The spinal vertebra shows no growth; the adrenal is smaller (first time!!) and the lung lesions are shrinking. SMALLER. Other good things? I found the clothes basket with the missing underwear which now doesn't fit because of my 40 pound weight loss. No, I wouldn't recommend this diet. Another good thing? I had the energy to look for and find the laundry basket. -- I've got my appetite (and hair) back with this maintenance treatment of Yondelis. Ah, I'm pulling out the tape measure, and then ordering my fav underwear from Hanes.com. Heck, I may even order some yoga pants since all I have are black.....and too big (fortunately they have drawstrings....so they fit any weight.)

At this point, only my roommate, my mother and one friend know what I'm going to tell you. First let me apologize to all my friends for not telling you personally. I just can't do it. This disease spreads. It is rare and aggressive. I'll be fighting this for the rest of my life, whether I'm in active treatment or not. We've known there will be recurrences. The November surgery was due to a PET scan that showed a mass which turned out to be benign. Two days ago, I went for a CT/PET scan. Yesterday I got the results. There are new lung lesions/nodules. Something is happening with the liver (previously it was identified as scar tissue, now it is active). There are suspicious spots in my intestines, but with the healing (at least it shows on the PET scan, it doesn't seem to be getting smaller). There's activity within a neck lymph node, which (like the others) was there in October, and is now larger/more active. Several months ago, my oncologis...

My oncologist called yesterday.  She's concerned about something she saw.  She reassures me that she's gathering more information.  Monday's appointment is cancelled, and a PET scan is scheduled for Wednesday, with an appointment with her that afternoon.  She's very good about asking how I am doing.  At this point, I'm intellectualizing, and approaching this as a healthcare professional.  ---I kinda feel like the Doctor on Voyager (from Star Trek). Here's a good explanation of the PET Scan process/ rationale.  <<<PET scan >>> That site is specific for lung cancer, but seems appropriate since we need to know if the "nodules" in the CT scan are from the uterine sarcoma. Specifically there's a 4 cm nodule in the right lower lobe.  Since the PET scan article says "Because lesions larger than 3 cm are almost always malignant,..."  Today is a beautiful day.  -- Well, all Fridays are, aren't they?